In English

Swedish FTD Initiative

Frontotemporal dementia (FTD) is a very complex and severe cognitive disease, and currently, there are no treatments that can cure, prevent, or alleviate the disease. Therefore, the need for research studies on FTD is very high.

With support from The Schörling Foundation, a multidisciplinary consortium named the Swedish FTD Initiative (SweFTDI) was formed in 2017. The consortium is a collaboration between Karolinska Institutet (KI), the Royal Institute of Technology (KTH), and Science for Life Laboratory (SciLifeLab). SweFTDI was founded by four prominent researchers from different scientific fields, who, together with their respective research groups, represent various parts of the research. The common goal is to be able to diagnose earlier and more accurately in the future and to develop preventive and curative treatments. Through national and international collaborations between research groups and doctors, patients, and relatives, opportunities are created to find different solutions. SweFTDI conducts collaborations within several interdisciplinary projects where patients and relatives can also participate and contribute.

With the information we have gathered here about everything we know today about frontotemporal dementia and how the disease develops, we want to support patients and relatives. In our calendar, we inform about upcoming events within the SweFTDI, such as seminars where there is an opportunity to interact with researchers and clinicians in the field. The hope is that the website can also promote access to more samples and more patient data for us researchers, which is crucial for us to be able to:

• Conduct experimental research to understand the underlying causes of FTD
• Conduct clinical research to understand how the disease manifests in patients and thereby improve diagnostics

As you can tell, this website is primarily amied to support the Swedish speaking audience as we noticed it was very hard for non-English speaking Swedes to find information about frontotemporal dementia. For the English speaking visitors of this website, we have gathered some helpful links and information folders in more information. There are also some short videos in English throughout this website, please pay them a visit. These videos were provided by the Rhapsody program. The Rhapsody program consists of a [not yet released] series of educational short videos to inform about early onset Alzheimer´s disease and frontotemporal dementia. We recommend a visit to the US website theaftd.org.

If you wish to get in touch with us, please use the contact form.